Russ and I had a quick talk with Dr. Hawkins today about the surgery tomorrow. Mostly he told us quickly what he would be doing and why. Most of which I already knew. Mostly from looking up information on truncus. I hadn't looked up any information on his coarctation of the aorta, which they saw in the echos he had over the past few days, mostly because I never could remember what they called it. The nurse today looked it up for us while we held Dylan and it showed how they typically repair it, so by the time we talked to Dr. Hawkins, I was aware of what they would be doing.
The main thing I hadn't realized was that while truncus is rare, truncus with a coarctation of the aorta is extremely rare. Some even think it's impossible to have together, which apparently it isn't. Dr. Hawkins said in the time he's been doing this, he's only seen one other case where the truncus also has the coarctation. He's seen lots of truncus cases and lots of coartation cases, but only one other one together. He said that Dylan will have a 70-80% chance of surviving the surgery. I'd like those numbers to be higher, but at least it's not the other way around.
I'm sure I'm not going to sleep well tonight. His surgery is the first one of the day, so Russ and I need to be to the hospital by 7:30. Earlier if we want to have more time to hold him before the surgery. I'm sure I'm going to cry when they take him back. Russ too. Please remember to keep Dylan in your prayers, especially tomorrow.