Sunday, February 7, 2010

National CHD Awareness Week

Today marks the start of National Congenital Heart Disease/defect Awareness week. There are a few things associated with this and with the local support group that I belong to (Intermountain Healing Hearts) that I am aware of.

Up at Primary Children's they have a banner on the parking structure stating that it is National CHD Awareness Week and have a table with cookies. Also this week on the 15th, Paul Cardall is having a concert with a silent auction to benefit some who have been affected by chd's. I believe tickets are still available. Later this month, on the 20th at the Kearns Olympic Oval from 1-4 is an event sponsored by IHH to raise funds for research and awareness for chd's including prize drawings and a silent auction (not to mention ice skating, music and food). Admission for that is $10 per person or $50 for a family of 5 or more, including an entry in the drawing for each family member.

Me? I'm not sure yet on if we will be going to the ice skating thing (although I'm sure my kids would love it, especially since every time we drive past the frozen ponds where we saw a family playing hockey one day they ask when we will take them ice skating). But I have put the Valentine's hearts on my car again this year and plan on leaving them up for as long as I can stand this month. And seeing as my polka dots have all faded, I may just keep them up all month. Much to Jimmy's chagrin.

I saw this poem on the blog of one of my second cousins who lost a daughter to a chd. Thought I would repost it here and add, as she did, that I hope the author doesn't mind. I believe it was written for CHD Awareness Week.

Somewhere...someplace... today...
A family is waiting to hear...
Is something wrong with their baby?
The answers aren't quite clear...
This family has entered an unwanted world...
And they just don't know what to expect...
Somewhere...someplace... today
They first heard the words: heart defect.
And how they hoped this was not true...
And thought... this cannot be...
I too... know just how this feels...
For one day...this was me.
Somewhere...someplace...today...
A man and a woman embrace...
Their baby is in surgery...
They long to see her face...
They haven't got to hold her yet...
Without...a cord or line...
They pace the room awaiting news...
And hope she'll be just fine.
Prayers fill this busy waiting room...
And mom and dad are scared...
Somewhere...someplace..today...
The tiniest hearts are repaired.
Somewhere...someplace...today...
A child's growing fast...
Smiling,laughing,thriving...
His mom thinks...can this last?
It's almost easy...to forget...
That anything is wrong...
Somewhere...someplace..today...
Her child seems so strong.
Somewhere...someplace... today...
A little boy fights...just to live
A father holds his tiny hand...
His love...all he can give...
The doctor's are all baffled...
They fear that he might die...
Somewhere...someplace...today...
A family says goodbye...
Somewhere...someplace...each year..
More than 40,000 families will see...
What it means...when something's wrong...
They'll face a CHD.
Today...for just a moment...
Stop...remember...reflect...
Make time to tell someone you know...
"I've been changed by a heart defect"
Author - Stephanie Husted

1 comment:

Linda said...

Oh man Cindy!! That poem made me cry!!!!