About Wednesday of last week I received an apologetic call from Primary's saying that they would not have any sedation techs there the day he was scheduled for his next sedated echo (that date was today) and they had one time open that Friday at 8 a.m. that they were saving for him if we could take it. I asked them when the next available time they had open after his original scheduled one. They checked the schedule that would work to also meet with his pediatric cardiologist and the soonest they could get him in if I didn't take the one open time wasn't until September. So knowing it would be challenging for us, I opted to take the time they suggested.
Mostly it was challenging because Russ had training stuff at work he couldn't miss and the kids had a big program followed by their annual picnic on the playground and flower planting at the school. But it got worked out with Russ just going in a little late to work to help get the kids off to school and my mom came up to get Molly over when she was supposed to go and watch Lys.
With the appointment at 8 and knowing I wouldn't be meeting with his PC until today, I figured I should be back in time to see the program. Unfortunately, the sedation left Dylan a little nauseated and he threw up a couple of times. They wanted to make sure he was okay before they let us go home. After the second time he threw up, they got him some anti-nausea medicine. After waiting some time to make sure that actually helped with his hurlings, I was finally able to leave. I got to the school after the program had ended and about the time they were starting to eat for the picnic.
Today I went back to meet with his PC and get the results of the echo. The timing with this appointment was actually pretty nice. I picked up Molly when she was done with kindergarten for the last time and headed down to his appointment. I got back in time for Jimmy and Emma to get out.
Dylan's cardiologist told me that his heart function looks about the same. Still has the leaking from the valve, but the heart can take leaking for quite a while. His problem is that the veins going into his lungs are narrow. He wants Dylan to get an MRI to see exactly how narrow. If they are too narrow, he will need to get a cath to get them expanded. He wouldn't worry about the veins being narrow if he thought that Dylan would need to get his conduit replaced soon, but since he thinks it will be a while before he needs that surgery he feels we need to get this taken care of. He did say one option would be to just go ahead and do the cath but really doesn't want to do it if it isn't necessary.
The plan now is that they will get the pre-authorization for the MRI from the insurance and then will give me a call to schedule it. I should hear from them within the next couple of weeks to get it scheduled and have the MRI done sometime within the next couple of months.
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