More Stitches for Dylan

Yes, I'm a bit behind on posting.  But at least I'm trying to catch up, right?  Anyway, a few weeks ago Dylan was playing with his sisters and fell into a bed frame and cut just above his lip.  He ended up with three stitches.  He was actually really good taking him to the doctor.  Only cried with the last stitch, because that one hurt him a little bit.  He was lucky and the numbing cream worked well enough that they didn't have to give him any numbing shots.  His lip looked better and better each day and by the time the stitches came out (which we took out ourselves after he fell asleep because he was a little scared about getting them out), it was back to normal.  Well, as normal as it will be now with a nice little scar.  

As we were sitting in the procedure room of the instacare, I commented to Dylan that one of these days I really need to get him the t-shirt that reads, "Chicks dig scars."  And maybe someday I will.

Dylan's Latest Echo

Early in May, Dylan had his routine echo cardiogram.  It had been scheduled as a sedated echo, but we were able to try it unsedated.  I was very happy when he held perfectly still and let them get all of the pictures they wanted of his heart.  He was happy watching the television shows they had in the small room, and would occasionally turn his head to look at the screen showing his heart.  Granted, I think a big part of his holding so still was that his Grandma Jamie bribed him ahead of time.  Told him that if he held really still and let them give the echo that she would buy him a box of blocks.  He loves blocks so it was the kind of bribe that really worked for him.

His echo went well.  He obviously still has quite the leaky pulmonary valve (seeing as he doesn't really have a pulmonary valve), but his heart is doing well.  Well enough, in fact, that we don't have to take him back for another year!  That's the longest he has ever gone between cardiology appointments.  I'm hoping that means that surgery will still be a few years away (last year his cardiologist said that his heart cath postponed surgery a "couple of years" so I've always kind of figured it would be sometime before he starts kindergarten).

Dylan has really grown up over the last year and a half.  He used to be quite afraid of adults other than his dad and me.  But he now seems basically over it.  Still gets a little shy at times, but will actually talk to adults when they ask him questions (well, most of the time) and goes to his class at church without issue.  He's even excited about going to preschool in the fall.

Happy Birthday Alyssa!

Today is Alyssa's 7th birthday.  We had a birthday party for her yesterday.  It was a hot day so we made it a water party where we had water balloons, squirt guns, and a slip 'n slide.  Well, we also had a pinata, but we always have one of those.  Everyone seemed to have a good time.  Even Russ, who at the very end started to pick up kids and swing them and then let go so they would slide quickly along the slip 'n slide.

I made her a cake with some horses made out of fondant.  I was actually pretty happy with that one.  Needed to take more time when I painted the food coloring onto the horses, but I was still happy with them.  Not so happy that I had to make the feet after they accidentally got melted, but was glad it wasn't more.

Happy birthday, Alyssa!

Ah! I Have a Teenager!

I'm a bit late on posting this (which seems to be the story of my blog lately), but about two weeks ago, Jimmy turned 13.  Yep, I am the proud parent of a teenager now.  He didn't get a big party this year.  He planned one and decided to cancel it when he saw the forecast showed that it would be cold and stormy.  Instead he went with a friend to Boondocks and had a good time.  I made him a cheesecake that he ate all by himself.  Kind of planned on that and actually made a second cheesecake and a regular cake for everyone else.  What can I say?  My sweet tooth was acting up.

So even though it's belated, happy birthday Jimmy!  I hope this coming year is a great one for you.  And I still need to get around to telling you about the day you were born, don't I.

*By the way, he said he hates this picture of himself.  Which he wanted me to mention.  And so I did.

Playing Catch-Up

Yes, I realize I am way behind on my blog. I blame that (at least partially) on not having a working camera. Thanksgiving, Christmas? No working camera, no pictures. Well, I suppose I have a working camera with my cell phone, but it really isn't a good camera. Yet it's better than nothing at all. Which is why I am including a couple of pictures in catching up. Even one relating to Christmas.

The holiday season was a nice one.  We spent Thanksgiving with Russ' family.  It was one of the few years that all of his brothers and sisters were there.  We had some family pictures taken, which I'd include but I didn't find them quickly and am feeling a bit lazy to search more for them. I may post them at a later time.

Christmas was nice as well.  We always spend Christmas Eve with Russ' family and did so again this year.  On Christmas we went to my parent's house and had a nice dinner with them.  Both of my sisters who live nearby went on vacation over Christmas so it was just us.

We have a tradition of opening up new pajamas on Christmas Eve.  Used to just  be to open a present, but it's become opening pajamas.  Jimmy made presents for his sisters and brother (except for Rachel because she is a bit young for it) and we also let them open the gift from him then too.  He made them each pillows.  Did most of the sewing for it himself.    This is a picture taken that night in their new pajamas and with their pillows. 

Later I took this picture of the kids.  Not all were thrilled to have it taken.

We drove up to Boise over New Year's weekend to visit my sister.  Her son got baptized that weekend.  We had fun going up and visiting.  I didn't get a single picture that weekend. 

The next weekend, Rachel was playing with her sister and tripped and hit the bridge of her nose along the edge of the tile and cut it nicely.  I took her to the instacare even though I figured it wouldn't need to be stitched.  They did put glue on the cut because she had some loose skin and it would keep it protected and safe from infection.  She still has a ridge on her nose from the loose skin and how it refused.  I'm sure she will have a scar from it.  This picture was taken shortly after she hit it and after we wiped away some of the blood.  She had nice black circles under her eyes for a while.

As I've mentioned before, the week of Feb 7 to Feb 14 is National Congenital Heart Defect Awareness week.  I helped with Intermountain Healing Hearts to make sure we could still have a banner hung on the parking garage for Primary Children's Medical Center and we had a table set up on the 3rd floor of the hospital with cupcakes, fliers, and other things to help spread awareness.  A.Rae, the historian/angel liaison on the governing board for IHH was very nice and made some pictures for use on Facebook for some of us who have children with heart defects.  She made this one for me:

I also went with Brytten to Capitol Hill during CHD week. We were representing IHH at Non-Profit Day on the Hill.  We had a chance to talk to some of the representatives up there about IHH and what we do and a little about pulse-ox testing of newborns.  I think it turned out well and we were able to talk to several people.  They wanted one person to go take notes to the representatives and to speak with them and the other to stay at the table we were given to use to talk to anyone who might come by.  I stayed at the table.  My representative for where I live happened to walk by the table so I was able to talk to him.  We basically had our table there set up like we had the table set up at the hospital, only we also had the posters IHH uses at events.

 While we were both sitting at the table waiting for things to get started, we had a visitor from another non-profit come by to visit us.  Only she wasn't supposed to and it startled us when she came.  Something about the flapping of wings by your head when you aren't expecting anything.  She was a toucan from Tracy Aviary.  Later they had a golden eagle.  I commented I was glad it wasn't that one that "attacked" us.  The last two pictures are of the bird and of Brytten at our table.

And now I'm basically caught up.  Well, except for mentioning the big wind storm we had at the beginning of December that caused some damage to our house and knocked down branches from a couple of trees and caused our neighbor's tree to fall through the fence.  It also caused us to go without power for nearly 36 hours.  But I won't go into that.  I think this post is long enough.

Happy 10th Birthday Emma!

Today is Emma's 10th birthday, which means she no longer belongs to the single digit club. I think she's had a good day. She has been very excited about her birthday, partially because she also had her party today. 

Everyone seemed to have a good time at her party, especially with the amount of candy that came out of the pinata once it finally broke apart.  Emma had told me she wanted a cake with a puppy jumping out of a present but we compromised and I did puppies with cupcakes.  Made the one for her the biggest and made smaller ones to easily fit on the cupcakes.  Didn't take my time to make them look very good, but Emma loved them.  First thing she wanted to do when anyone showed up for her party was show them the cupcakes.  She invited six girls and one called right away to tell her she would be out of town so couldn't make it.  All but one other came.  But the best part?  It's over and I don't have to worry about it anymore. :)

Here's a picture of the cupcakes.

Happy birthday, Emma!

Dylan's (non-heart) Surgery

Wednesday Dylan had his surgery that I had written about in an earlier post.  I was almost surprised that he was actually well enough to have it.  He had been sick the week before and had a hard time getting better.  At one point in the car he had even sighed and said, "It's hard to get well."  Where I'm sure Dylan wouldn't have complained to have the surgery postponed, I really didn't want to have to wait even longer for it.

While it isn't nearly as scary as open heart surgery, I found myself getting a little nervous for his surgery.  I really think more because I was afraid he would wake up that morning sick.  But once we were on our way, I was fine.  Dylan was surprisingly good before his surgery.  He was happy and even answered the nurses when they would ask him a few questions.  I think it helped that they planned on waiting until they had him asleep to start an IV.  They also gave him some medicine to help him feel calm and a little sleepy.

They brought out a wagon for him and let him take along a toy he had been playing with and wheeled him off to surgery.  About an hour and a half later, his doctor found me in the waiting room and told me he did well.  Said the hydrocele repair went just as planned.  Said the other part didn't quite go as planned.  There wasn't as much flexibility as there should have been plus there was an interesting growth that he nor the two associates he pulled in had ever seen (making a combination of about 60 year's experience).  But it's nothing harmful and should be fine (they did send it off to pathology to make sure).  Of course, his telling me that brought back memories of meeting with Dr. Hawkins the night before Dylan's open heart surgery and being told that in all his years as a heart surgeon, he had only seen truncus with a coarctation one other time.  I'm not sure I like Dylan being quite so unique.  Ah well.

Dylan woke up from surgery really unhappy.  He didn't like the pulse/ox or the IV.  He cried that he wanted them out and he wanted to go home.  After a while I got him to take two sips of apple juice and the nurse took everything off and I got him dressed to go home.  He cried the whole time.  Only stopped when we were heading out the door of the recovery room.

He has done pretty well.  Walks a little funny, but that's expected.  This morning he woke up showing more pain than he has since having the surgery.  It has been the only time that I haven't had to fight him to take pain medicine.  But it worked nicely and he's back to running around and playing like nothing is wrong.